Staff carers' understanding of end of life care

SL Friedman, R Choueiri… - Journal of Policy and …, 2008 - Wiley Online Library
Staff carers in pediatric skilled nursing facilities (PSNF) deal directly with dying residents,
and are on the forefront of communication with families. These providers have expressed …

End-of-life care policies and practices in pediatric skilled nursing facilities

SL Friedman, DT Helm… - American Journal of …, 2014 - journals.sagepub.com
Although most children with intellectual and developmental disabilities reside in the community,
a subset of children with severe intellectual disability and complex medical needs reside …

Promoting collaboration between hospice and palliative care providers and adult day services for individuals with intellectual and developmental disabilities

CR Ronneberg, L Peters-Beumer… - OMEGA-Journal of …, 2015 - journals.sagepub.com
While end-of-life issues are increasingly gaining more attention, people with intellectual and
developmental disabilities (IDD) continue to receive significantly less consideration in …

Effect of online palliative care training on knowledge and self-efficacy of direct care workers

J Kim, JA Gray - Intellectual and Developmental …, 2021 - meridian.allenpress.com
We evaluated the effectiveness of an online training on palliative care knowledge and self-efficacy
among staff working with people with intellectual and developmental disabilities (IDD) …

[HTML][HTML] The experience of caring for a dying client with intellectual disabilities. A qualitative study with direct-caregivers

HJW Bulsink, JJ Georges - Open Journal of Nursing, 2013 - scirp.org
Background: Caregivers experience problems when caring for people with intellectual
disabilities who are terminally ill. Aim: The aim of this study is to gain a deeper understanding of …

Palliative care experiences and needs of direct care workers

J Kim, JA Gray - Journal of palliative medicine, 2018 - liebertpub.com
Background: As people with intellectual and developmental disabilities (PWIDD) are living
longer and experience chronic health conditions, there is greater likelihood that direct care …