In this Issue: 

Garage Sale, Back to School, Family Camp, Patient Satisfaction Survey, 2023 Golf Tournament, Member Service Reimbursement, Recall Notice, Grey Cup Pool, Youth Trivia Night, CHS Rendez-Vous on YouTube   

Garage Sale in Support of the Chapter 

Hosted by Katherine and Bruce Cameron this Sat. Sept. 2nd 9-2pm
Back Lane of 104 Risbey Crescent - rain or shine.
 
We have been trying to downsize our collections spanning 40+ years of antique, auctions and garages sales. From general household, vintage to antiques we are clearing out selected items.
Primitives, mid century modern, vintage glass ware, smalls of all kinds. Hobby Stain glass supplies: various coloured sheets of glass and grinder. Bring cash or cards and we will also have Grey Cup pool tickets!



More photos on the Chapter Facebook page @HemophiliaMB.

Back to School!  


It's hard to believe that summer is over and the new school year is about to start! Is your child attending a new school? Do they have a new teacher? The CHS has resources to help you navigate the discussion with school personnel about your child's bleeding disorder. We have some copies of each of these in the office. Email us at info@hemophiliamb.ca if you would like us to send you a copy. You can also download the PDFs:

Hemophilia; What School Personnel Should Know
Von Willebrand Disease: What School Personnel Should Know

There are many more excellent resources available from the CHS in the Educational Catalog.

CHS-MC Family Camp

The Chapter welcomed families at Luther Village this July for Family Camp! Thank you to Rose Jacobson for coming to camp to deliver bleeding disorders education and to help adults and children learn how to administer their medication.
  
The fun doesn't stop if it isn't "beach weather." Activities in the afternoon included archery, fire making and critter catching off the dock. There were raucous games of Jungle Speed and the annual frog catching! (catch and release)



Sometimes you have to be creative to deliver a presentation. A bed sheet on a piece of foam for a screen is a new one for us! Big thank you to Milena Pirnat and Shelley Kubin for the excellent talk on women and girls with bleeding disorders! Thanks to the campers for sharing their experiences. Together we are STRONG!



Is 2024 the year your family comes to camp? Learn all about Family Camp on the Chapter website. 

Thank you to our 2023 Family Camp sponsors: 

 

CHS Patient Satisfaction Survey 

The bleeding disorder treatment centres recently went through a rigorous self-assessment of their services. A national report was published with the results of these assessments; click here to consult it.

It is now time for patients to tell us about the care and treatment they are receiving in their treatment centre. The survey will identify strengths and weaknesses in the care and treatment services provided by treatment centres from the patient’s or caregiver’s point of view. The information gathered will be used to evaluate how well the centres are meeting the Canadian Integrated and Comprehensive Care Standards for Inherited Bleeding Disorders. The goal is continuous improvement.

Below you will find the link to the survey. Please share it every time you can with your members. The more responses we have, the more relevant the data will be.

A flyer promoting the survey, which will include a QR code as easy access to the survey, will also be made available in a few weeks to chapters should they want to hand it out at community events. It will also be sent to treatment centres across the country.

Link to the patient satisfaction survey: www.surveymonkey.com/r/Patients-survey 

2023 Golf Tournament - Best Ever! 



Congratulations to Aimee Veldkamp, Kevin Dudych, Tony Tavares and Cam Dueck for a very successful August 3rd tournament! We welcomed 84 golfers and doubled the previous year's' revenue! The 2023 Golf Committee made significant improvements to the event including the new August date, changing the venue to Bel Acres and attracting many new sponsors. This dynamic group already has great ideas for 2024. 

Thank you to the volunteers who made the day so much fun for our guests. It takes a small army to execute a tournament. These folks braved the hot day and gave the golfers a wonderful experience from registration to playing games and running contests: Bruce & Gwenn Bodie, Casandra Brescacin, Cory Prestayko, Dana Beljanic, Elizabeth Olive, Emily & Jenn Rennie, Hayden & Shane Keilback, Libby, Sandra and Joey Penner, Judith Wasylik, Lorrie Therrien, Paulette Cote &  Peter Czehryn.

Tournament Winners

1st Place – Team #14b Thomas Johnson, Kerry Johnson, Jesse Gardiner & Hans Minish

Most Honest – Team #15b Robert Schafer, Bryan Morris, Mitch Stubbs, Harv Dueck

Chipping Contest – Team # 15b Robert Schafer, Bryan Morris, Mitch Stubbs, Harv Dueck

Longest Putt Female – Susan Gerlach  Longest Putt Male – Blair Graff

Putting Contest – Grant Mills  Closest to the Pin – Adam Gallos

Longest Drive – Matt Towns  Grey Cup Pool Draw – Marcel Petit

How many balls in the bucket? – Regan Mohr

Please visit 2023 Golf Tournament to see all the photos from the day and all our generous sponsors. 

Easy Member Service Reimbursement Online!  

The CHS-MC Member Services Policy was developed to provide support, in the form of financial assistance, to Chapter members for eligible expenses that are related to living with a bleeding disorder. You can visit all the services we provide in Member Services on the Chapter website.

CHS-MC Member Services will help to cover expenses that are:

• related to living with inherited bleeding disorders and their complications
• recommended for treatment by a member of the Manitoba Bleeding Disorders Program (MBDP) treatment team
• NOT covered by other agencies or insurance plans
• identified by the Member Services Committee as eligible expenses

Recall: Users of RIXUBIS and FEIBA


 
Please go to the link for all the details: bit.ly/Recall-August2023

We have 2 pools of 900 tickets! The $5 tickets come in sets of 10. Please contact the office if you would like some tickets to sell: 204.775.8625 or info@hemophiliamb.ca. We had an early start to the Grey Cup Pool season. Volunteers at the golf tournament sold 114 tickets! 

Funds raised by the annual Grey Cup pools support direct services provided in Member Services program.

CHS Youth Trivia Night 

The Saskatchewan and Newfoundland Chapters are inviting CHS youth to participate in a trivia night on September 13th. The event will start at 5:30 pm, Manitoba time. 

If you are interested, please contact the office at info@hemophiliamb.ca. We will email you the access link closer to the event. Watch the Chapter's Facebook @HemophiliaMB for more information! 

CHS Rendez-Vous Medical & Scientific Presentations on YouTube

Don’t miss a great opportunity to access important and relevant information! The complete Rendez-vous 2023 Medical and Scientific Symposium, held on May 5, 2023, is now available for viewing on the CHS YouTube channel. This is the best place to learn about innovative coagulation therapies, women with bleeding disorders, mild hemophilia and gene therapy.
CHS YouTube