Karina is a severely ill ME sufferer forcibly removed from her home

Karina is a severely ill ME sufferer forcibly removed from her home

Started
23 May 2013
Petition to
Danish Health and Medicines Authority (Sundhedsstyrelsen) (Axel Heides Gade 1 2300 Copenhagen S Denmark) and
Petition Closed
This petition had 2,789 supporters

Why this petition matters

Started by Justice for Karina Hansen

Thank you for helping Karina
Karina Hansen, is a severely ill ME/CFS sufferer forcibly removed from her home, against her will, by Danish psychiatrists. Myalgic Encephalomyelitis (ME/CFS) is an horrendous, debilitating and physical illness, which leave the sufferer in terrible agony and extreme exhaustion. And if mistreated, can and is fatal. 

Here is a video about severely ill me/cfs patients like Karina
http://www.youtube.com/watch?feature=player_detailpage&v=fiuqTx0u-Yw

Please help, us raise awareness, for Karina's. By voting on the other e petitions, “liking” the facebook page and taking part in the letter writing campaign. Details of, which can be found on the facebook page

e petitions on causes.com, 
http://www.causes.com/actions/1752801-severely-ill-m-e-patient-held-in-hospital-against-her-will ;

Avaaz.org
http://www.avaaz.org/en/petition/Justice_for_Karina_Hansen/?copy

and i petition “postcard for Karina”
http://www.ipetitions.com/petition/postcardtokarina/

Facebook page, Justice for Karina
https://www.facebook.com/JusticeForKarinaHansen

You can also find us on: twitter @justice4karina, pinterest justice4karina, google + justice for Karina Hansen and linkedin

There is also a fuller explanation of me/cfs which the Danish Doctors, treating Karina, should have read, is in the link below.
http://eleanorsteinmd.ca/wp-content/uploads/downloads/2013/02/Guidelines-for-Psychiatrists-English.pdf

And finally a little bit about me and why I know what the Doctors are doing is wrong

I was born in Jerusalem. The Doctors and Nurses, not being accustomed to light haired babies thought I looked bald and called me Kojak. And years later, when every they saw me they would greet me with a huge smile, arms out stretched saying “ah Kojak” and would give me a lolly pop (who loves ya, baby). I have lived all over the worlds in Israel, Pakistan, Kashmir, Honduras, El Salvador, Guatemala, Scotland, England and Mexico. I gained my Duke of Edinburgh's award whilst at School in the Highlands of Scotland, before going on to become a PADI dive Instructor in Mexico. Finally completing my education with a degree from University

Before the illness, I was very fit and healthy, Playing Rugby, Field Hockey, Tennis and running middle distance for fun and with ease. Until, in 2011 a series of minor events culminating in the worst flu of me life, lead me to develop severe ME. I felt I would die at any moment, and being in the countryside, I decided to struggled to the GP's surgery. Feeling that if I was going to die I may as well die there as anywhere.

So I had go, in an instant, from being very fit, strong and healthy, with an athletic heart. To being close to death, with high blood pressure, high heart rate, palpitations, extreme exhaustion and weakness, seizures, shaking, pain so bad I wanted to rip my chest open just to relieve it, adrenalin like white hot poison in my veins, lightning flashes and white blotches in my vision, a feeling of having a swollen brain and spinal cord, an electrice strom in the back of my head, cognitive difficulties, to name, but a few. However, when I saw the GP he became irritated and said “it's probably viral”. I don't know how I have survived to write this account, let alone know how I managed to get home that day, but I did. For the next four months I struggled back and forth, seeing different Doctors, and all I got from each was “it's probably viral”. 

By Christmas 2011 I felt so ill and my organs hurt so much I thought they would shut down completely. So I struggled back and was seen by a new Doctor, who immediate diagnosed me. Nevertheless, over the next months I was given no help, whatsoever from the GP's even having to ask for particular tests to carried out. And my GP would simply say “oh yeah that would be a good idea wouldn't it”. In the end I gave up on them, as the trips only made me sicker. And I learnt as much as I could from other sufferers and the internet.

During those first weeks, I was so ill I could do nothing, but rest and I did begin to recover a little. So I took the opportunity to continue exercising, going for walks whenever I could. Unfortunately, that was the worst thing I could have done, as it only made me relapse, which would make me worse and worse. Until, finally, I was even more severely ill than I had been at the beginning. I ended up bedbound for 8 months with every symptom in the book and a higher heart rate and more exhausted than I had been while out running. I was also so weak that when I did struggle out of bed, I couldn't even left an empty kettle. And was reduced to shuffling, or crawl round the house, like a sickly ninety year old man.

Thankfully, I've learnt a lot about the illness and how best to treat it, recovering a great deal in the last 6 months. So that now the illness is just unpleasant, rather than life threatening. However, if I'd known then what I know now. And if I'd rested instead of exercised, I'm sure I would been much close to recovery by now. And the illness wouldn't have been anything like as bad as it turned out to be. That is why I know, what Karina's Doctors are doing is wrong. And that Doctors like them, all over the world, must be made to take ME seriously, before they end up killing anymore sufferers. And they must look at the scientific evidence and not just ignore specialists simply, because it doesn't suit them. This could happen to anyone and has happened all to frequently in the past. With illnesses MS, polio and so many others that were all thought, by misguided Doctor, to be all in the mind. Until the over whelming weight of evidence forced them to admit the truth. I can even happen with Cancer. As my Auntie found out, when her GP diagnosed her with depression and then IBS. When it was actually Cancer. Cancer that didn't show up in any of the scans  

Kind regards

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Decision-Makers

  • Danish Health and Medicines Authority (Sundhedsstyrelsen)Axel Heides Gade 1 2300 Copenhagen S Denmark
  • Danish regional Office:Statsforvalningsen Midtjylland St. Blichers Vej 6 Postbox: 151 6950 Ringkobing
  • County Office:Holstebro County – Mayor’s Office Rådhuset Kirkestræde 11 7500 Holstebro Tlf. 9611 7500
  • International Press Centre2, Vestergade, 2. floor DK-1456 Copenhagen K
  • The Editorsdenmark.dk