Welcome
To the online support group -
Mycosis Fungoides UK
PLEASE CLICK HERE FIRST FOR GUIDELINES ON POSTING MESSAGES
PLEASE NOTE: This site is intended as a support group only. You must NOT proceed with any medical advice given in this site, unless it is with the agreement of your doctor.
When you apply to join, please state a reason for wishing to do so...
The site is aimed at patients and relatives/friends of patients who have Mycosis Fungoides. We have members not only from the UK, but the US, Canada, Holland, Turkey, Israel, Croatia, Singapore, New Zealand, Germany, Belgium, South Africa, Australia and other parts of the world as well. Anyone is welcome to join, whatever country you come from! The more who join the better..
Mycosis Fungoides is a rare disease that affects only only a few people per million. We are certainly not experts in the disease, but we all need support at certain times and it helps to share experiences with people who are going through the same thing. We were not intending that this group's site would provide hard medical information about MF - but we have now included a page that we feel explains Cutaneous T-Cell Lymphoma in an easy to understand way. Also there is information on other sites that provide medical information on the Links Page. Our main purpose in this group is to give you a chance to get to know other people who are affected by MF, to share experiences and to learn how others cope with this disease. This support group is very informal - you can chat and post messages about MF or family issues, but you are asked to keep the topics mainly MF related. Just kick off your shoes, pour yourself a coffee and explore our site by clicking on the links on the left of your screen....... Ask any questions you like!