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Journal of Pediatric Psychology Advance Access published online on April 2, 2007
Journal of Pediatric Psychology, doi:10.1093/jpepsy/jsm004
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© The Author 2007. Published by Oxford University Press on behalf of the Society of Pediatric Psychology. All rights reserved. For permissions, please e-mail: journals.permissions@oxfordjournals.org

Patient-Reported Outcomes in End-of-Life Research in Pediatric Oncology

Pamela S. Hinds, PhD, RN, FAAN1,4, Jennifer Brandon1, Caitlin Allen, PhD1,4, Nobuko Hijiya, MD2,4, Rachel Newsome, RN, BSN3,4 and Javier R. Kane, MD2,4

1Division of Nursing Research, 2Department of Oncology, 3Patient Care Services, and 4St. Jude Palliative and End-of-Life Care Task Force at St. Jude Children's Research Hospital, Memphis, TN 38105, USA

All correspondence concerning this article should be addressed to Pamela S. Hinds, PhD, RN, FAAN, 332 N. Lauderdale, Memphis, TN 38105-2719. E-mail: pam.hinds{at}stjude.org.


  Abstract

Objective The purpose of this review of published literature was to identify the number and focus of empirically based papers that included research methods used to directly solicit patient-reported outcomes (PRO) from pediatric oncology patients at end of life. Methods Key terms including "pediatric or child and oncology or cancer and end of life or palliative or hospice or dying" were used with five data bases (PubMed, Ovid, Cochrane, PsycInfo & PsycArticles, and CINAHL) for English language literature published between January, 2001 and June, 2006. All retrieved documents were independently reviewed by a panel of six (nurses, physicians, and one psychologist) with backgrounds in pediatric oncology. Results Thirty-five publications were identified but nine (25.7%) were eliminated from the analysis as they did not meet inclusion criteria. Of the remaining 26, four (15.4%) included patient-reported outcomes, six (23.1%) included parent only-reported outcomes, and five (19.2%) included staff only-reported outcomes. Nine (34.6%) were retrospective medical record reviews. Two (7.7%) included parent and record review data or parent and physician reports. Conclusions Empirically-based end-of-life publications in pediatric oncology are relatively few in number and nearly 85% of completed studies do not include PRO.

Key words: end of life; literature review; patient-reported outcomes; pediatric oncology.

Received September 11, 2006; revision received November 30, 2006; accepted January 10, 2007


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