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Joined: Mar 2004 Gender: Female Posts: 2,976 Location: Mid-South USA
Update, my mom, breast cancer, LDN « Thread Started on Dec 15, 2004, 10:22pm »
That should have read 8 months ago instead of 6 months ago below.
Today is December 15, 2004
Six months ago my mom was dx'd with a very aggressive form of breast cancer. She had a lumpectomy. I was already on LDN(Low Dose Naltrexone) for my Chronic Progressive Multiple Sclerosis so the very day my mom was dx'd with cancer I gave her some of my LDN capsules(4.5mg, lactose filler) until she could get her own script which she did. LDN is an alternative breast cancer treatment also & it works in many other cancers. My mom refused chemo and did the phone consultation with Dr. Bernard Bihari who is discoverer of Low Dose Naltrexone. We faxed him all of my mom's reports. My mom made her decision of no chemo after speaking to Dr. Bihari. As of today ALL of her bone scans, blood work, mammograms and other scans have all come back negative for cancer.
LDN has halted my 14 straight year Chronic Progressive Multiple Sclerosis dead in its tracks for 1 year and 8 months as of March 2005. I've had absolutely no disease progression since starting LDN. I take no FDA approved MS drugs, never have. I think that has played in my favor with the LDN.
Joined: Mar 2004 Gender: Female Posts: 2,976 Location: Mid-South USA
Re: Update, my mom, breast cancer, LDN « Reply #1 on Dec 15, 2004, 11:29pm »
Also....
Dr. Bihari told my mom that since she had been on LDN before the lumpectomy that any cancer cells that might have escaped during the surgery were destroyed like pac-men by the immune system that LDN had upregulated towards normal. Her surgeon and the oncologist she was referred to said if you don't take this chemo the cancer will come back and those doctors bashed and laughed at LDN. The surgeon saw my mom today and was amazed at how well she looked and was doing and sheepishly asked....Are you still taking that???? My mom said, you mean Low Dose Naltrexone? The surgeon said yes. Got the surgeon curious now, hee hee.
Re: Update, my mom, breast cancer, LDN « Reply #3 on Dec 31, 2004, 6:00pm »
I was directed to this forum from the lowdosenaltrexone forum by LarryLDN as I posted on there about using LDN for breast cancer and he suggested I might get more response here.
I was diagnosed with breast cancer in November through a routine mammogram, and at the time had been taking LDN for MS for approx 4 months. I have now had the lump removed and it has not spread to my lymph nodes although it was an aggressive tumor - a grade 3 I am now trying to decide on my course of action. I have been offered radiation therapy plus Tamoxifen (it was positive for estrogen receptors), and a choice of ovarian ablation (by surgery,radiation or Zoladex injections) or a short course of chemotherapy. I don't really fancy any of this treatment as there are side effects and I am feeling well at the moment. I am wondering if LDN on it's own would be enough to keep a recurrence at bay, I presume the original tumor had started growing before I started LDN. Does anyone have any opinions please
Joined: Mar 2004 Gender: Female Posts: 2,976 Location: Mid-South USA
Re: Update, my mom, breast cancer, LDN « Reply #4 on Jan 1, 2005, 1:04am »
Dr. Bihari has women with the tumor still in their breast using 4.5mg of LDN and either the tumor is shrinking or is no longer active since going on LDN. Some of these women have not had any other treatment except LDN. My mom's cancer was a stage 3 with no lymph node involvement and was not hormone receptive. 4.5mg of LDN is extremely important to use to fight breast cancer. Do not take less than 4.5mg. Dr. Bihari told my mom after looking at her medical records that she did not need chemo. But if she could, to take 2 500mg capsules of DL-Phenylalanine, 1 in AM and 1 in PM to keep her endorphins up throughout the day. Some people cannot take DL-Phenylalanine so don't use it if you have any of the conditions listed on the caution list. Info on DL-P is up towards the top of my forum. Use a very reliable compounding pharmacy for your LDN like Irmat in NY. I believe that breast cancer is on the rise because our food industry uses growth hormones to make our food bigger so we are getting hormone replacement therapy when we eat. This is why we have 5 year old little girls developing breasts and having to go to the doctor to take treatments to revert the breasts back down. I know someone who has a 5 year old little girl and the little girl started developing breasts. I suggested to the parents to stop feeding her the food from our regular grocery stores and buy her favorite "chicken nuggets" at a store in Little Rock where the meat and vegetables had no hormones/steroids. The child's breasts started shrinking and she's normal size at age 6 1/2. These hormones are a form of steroid and that's why our nation is getting fatter and fatter. The doctors and pharmaceutical companies are loving the increase in diseases, it means more money in their pockets.
NOTICE...The recommendation of the DL-Phenylalanine was for my mom's particular case. This may not be good for every cancer patient.
A wonderful cancer fighting fruit is Montmorency red tart cherries. Do a google.com or MSN.com search on Montmorency tart cherries and cancer.
Joined: Mar 2004 Gender: Female Posts: 2,976 Location: Mid-South USA
Re: Update, my mom, breast cancer, LDN « Reply #5 on Jan 1, 2005, 10:05pm »
This may help you. My mom's cancer and suggested treatment by oncologist.
My mom was diagnosed 4/21/04 so it's been longer than 6 mo. I started her on 4.5mg of LDN the night of 4/21/04. Surgery was on 4/29/04, Right Partial Lumpectomy.
Size of tumor 2.8cm, location 12 O'Clock.
Type Grade III, Poorly Differentiated, Infiltrating(Invasive) Duct Cell Adenocarcinoma.
Rate of Growth(percentage of cells dividing) S-Phase Of-13.6%(High-Fast)
Sentinel Node Axillary Lymph Nodes, none of two were positive
Staging Negative for Metastases
Stage IIA (T2 NO MO)
Percentage chance of relapse: 33% over 5-10 years with no further therapy
Treatment Plan
Chemotherapy: 5-FU--Intravenously every 3wks along with
Adriamycin--Intravenously every 3wks along with
Cytoxin--Intravenously every 3wks
For six treatments
Then
Radiation Therapy for approx 6 weeks daily x 5 days, Monday through Friday
No Anti-hormonal(anti-estrogen) therapy possible
My mom chose 4.5mg of LDN instead of chemo.
My mom also takes two 500mg DL-Phenylalanine capsules per day at Dr. Bihari's request to keep her endorphins up throughout the day. If you have High blood pressure do not take this supplement. Solaray brand is what we use. Read the caution on label before using. People with PKU cannot take this either.
Joined: Mar 2004 Gender: Female Posts: 2,976 Location: Mid-South USA
Re: Update, my mom, breast cancer, LDN « Reply #6 on Mar 1, 2005, 4:38pm »
March 1st, 2005
My mom refused chemo for her breast cancer and instead she chose to use 4.5mg of LDN with lactose filler and the radiation. Her last tests came back negative for cancer 3 months ago and now these recent ones today are negative.
She was scared into one single treatment of chemo by her doctors but once she got the idea of what the chemo poison was doing to her body she said...NO MORE...I will do LDN from this day forward.
Re: Update, my mom, breast cancer, LDN « Reply #10 on Sept 22, 2005, 3:16pm »
Hi Brenda: I am so happy to hear about your Mother's progress. Two of my nieces have had breast cancer and had operations, chemo and everything. It has been a long road for them both. I wish I had known about this new treatment for them. I also have a friend with MS. I keep giving all the info to him that you send, but I don't know if he takes it seriously or not. I hope his family will. My love to you and Lola. Sylvia Barker Meeks
Re: Update, my mom, breast cancer, LDN « Reply #12 on Sept 24, 2005, 5:34pm »
H Brenda. My husband has MS and has been on LDN for 2 years and then I ran across your information on your mother with breast cancer. I had breast cancer 7 years ago, went through surgery, chemo and radiation. Now I have a bony reoccurance, received radiation therapy in July. I am on hormone therapy with Arimidex. I am wondering if LDN would help me also. I thought I read somewhere that if you were on hormone therapy, it would not help. Do you know anything about this? Any help would be appreiciated.
Joined: Mar 2004 Gender: Female Posts: 2,976 Location: Mid-South USA
Re: Update, my mom, breast cancer, LDN « Reply #13 on Sept 25, 2005, 11:18am »
Quote:
H Brenda. My husband has MS and has been on LDN for 2 years and then I ran across your information on your mother with breast cancer. I had breast cancer 7 years ago, went through surgery, chemo and radiation. Now I have a bony reoccurance, received radiation therapy in July. I am on hormone therapy with Arimidex. I am wondering if LDN would help me also. I thought I read somewhere that if you were on hormone therapy, it would not help. Do you know anything about this? Any help would be appreiciated.
The LDN may not be as effective as it would have been had you not done chemo but taking LDN now would be a definite plus for you. I suggest the Brownwood Acres Red Tart Cherry Juice Concentrate for you also, my mom drinks this as an alternative cancer preventative. I think LDN is okay with the hormone replacement, just not something Dr. Bihari would recommend taking.
Joined: Mar 2004 Gender: Female Posts: 2,976 Location: Mid-South USA
Re: Update, my mom, breast cancer, LDN « Reply #23 on Jun 12, 2007, 2:37pm »
My mom had scans and bloodwork done and all came back negative for cancer. She will have mammogram done tomorrow and I will update here tomorrow. My mom asked her oncologist about this news release below and the doc said after the research is complete there will surely be great changes to come on how breast cancer is treated.
MSNBC.com
-------------------------------------------------------------------------------- Breast cancer treatment may fail most women Researchers say common chemotherapy drugs too risky for many patients ANALYSIS By Robert Bazell Chief science and health correspondent Updated: 4:52 p.m. CT June 5, 2007 What if an estimated 100,000 breast cancer patients got drugs that did nothing to combat their cancer, but put them at risk for heart failure and leukemia?
That is the implication of new research that was presented in private session at this week’s meeting of the American Society of Clinical Oncology(ASCO) in Chicago.
The research, from Dr. Dennis Slamon, chief of oncology at the University of California, Los Angeles, suggests that the most widely used chemotherapy drugs may not benefit most women. Although the research hasn't been published or peer-reviewed yet, it is expected to be soon.
The drugs are a common class of treatments called anthracyclines, including doxorubicin, epirubicin, and mitoxantrone. Since their introduction in the 1980s anthracyclines have replaced older chemotherapy drugs in the combination therapies given to women. Administered in the months after surgery and radiation, the chemotherapy is intended to reduce the chances of a life-threatening recurrence of cancer, especially in women at high risk for relapse.
Early on, researchers understood that anthracyclines could cause heart failure in some patients. Recently, evidence has accumulated about the additional risk of leukemia, which can strike years or decades after the treatment.
Evidence for the effectiveness of anthracyclines versus the older drugs remained murky. Then, a 1998 meta-analysis (a study of all the previous studies) found the anthracyclines did a 4 percent better job at preventing recurrence. Despite their side effects, that study elevated the drugs to the standard of care.
Treating many to help few The UCLA research questions that treatment.
Slamon played a key role in the discovery and development of the hugely successful breast cancer drug Herceptin. Herceptin, which changed the way the disease is treated, specifically targets a gene called Her-2 that is overexpressed in 20 percent to 25 percent of breast cancers (a gene is overexpressed when its effect becomes excessive in the body). Herceptin’s success proved that breast cancer is not one disease, but many, with each benefiting from a tailored treatment.
In this latest study, Slamon looked at a more recently discovered gene called Topoll-2, which is sometimes, but not always, overexpressed along with Her-2. Anthracyclines stop breast cancer because they target Topoll-2.
Slamon examined tissue samples from more than 2,000 women who took part in seven clinical trials. His analysis showed that anthracyclines work only in women who overexpress the Topoll-2 gene. Such women account for 8 percent of breast cancer cases.
The anthracyclines — with all their side effects — have almost no effect in 92 percent of breast cancer cases.
“It seems apparent that we are treating patients who don't need the drug to get at that group who have a huge benefit,” Slamon told me. “And now we need to direct our therapy and target it more specifically.”
'Exciting result' Even when other cancer doctors were willing to use anthracyclines only as targeted therapy, they couldn’t. There is no commercial test yet for the Topoll-2 gene, although there likely will be in a few months.
Nevertheless, Johns Hopkins breast cancer specialist Dr. Nancy Davidson calls the findings “an exciting result.”
“It's early; it's provocative. We are waiting to see it go through peer review in the usual fashion,” says Davidson, who is incoming president of ASCO. “But there's a lot of buzz.”
Fran Visco, a cancer survivor and president of the National Breast Cancer Coalition, agrees the work needs to be published and peer-reviewed — very soon.
“This is going to be a sea change in how we treat breast cancer,” she told me. “There is no reason we shouldn't be moving very quickly to publish it and quickly to figure out how we're going to implement it in practice. Women deserve no less.”
Joined: Mar 2004 Gender: Female Posts: 2,976 Location: Mid-South USA
Re: Update, my mom, breast cancer, LDN « Reply #24 on Jun 14, 2007, 2:07pm »
My mom had scans and bloodwork done and all came back negative for cancer. Her mammograms were 2 days later and all is negative for cancer. My mom's breast cancer free now for 3 years and 2 months. My mom also took her Breast Chek Kit by Plexus Pink that I got her for Mother's Day to her doctors and both doctors said it was a great tool. My mom's surgeon plans to put these kits in the shop of her new office once it is move-in ready. For info. on the self exam Breast Check Kit see link at bottom of page, just scroll down past the Google ads and see first post, if you take care of it it will last a lifetime, cost me in total for shipping from Arizona $40.00. Anyone interested in purchasing or even selling the Breast Kits, contact my representative, Celene.
Re: Update, my mom, breast cancer, LDN « Reply #25 on Dec 6, 2007, 8:30am »
Re: Update, my mom, breast cancer, LDN « Reply #13 on Sept 25, 2005, 10:18am » [Quote]
Sept 24, 2005, 4:34pm, ChrisGroff wrote: H Brenda. My husband has MS and has been on LDN for 2 years and then I ran across your information on your mother with breast cancer. I had breast cancer 7 years ago, went through surgery, chemo and radiation. Now I have a bony reoccurance, received radiation therapy in July. I am on hormone therapy with Arimidex. I am wondering if LDN would help me also. I thought I read somewhere that if you were on hormone therapy, it would not help. Do you know anything about this? Any help would be appreiciated.
Hi Brenda, I am new to the forum, so pardon newb questions. Chris Groff was exactly where my wife is now - surgery 8 yrs ago, bony recurrence, now radiation and Arimidex. Is there any way to contact Chris to see if she went on LDN and what her results were?
Re: Update, my mom, breast cancer, LDN « Reply #27 on Jan 10, 2008, 5:55pm »
Hi Brenda,
I have been diagnosed with Invasive breast cancer and underwent surgery recently. I had lymph node metastasis and hence may have to go for axillary dissection, chemo, and radiation. Saw the information about LDN and your mom. Is your mom still on LDN? When I start with LDN, are there any side effects that I have to watch out for? Should I start on a smaller dose and work my way up to 4.5mg? Thanks a lot for the help and support that you are providing here.
Joined: Mar 2004 Gender: Female Posts: 2,976 Location: Mid-South USA
Re: Update, my mom, breast cancer, LDN « Reply #28 on Jan 10, 2008, 11:29pm »
Yes, my mom is still on LDN and cancer free 3 1/2 years now.
If you are 105 pounds and over start with 4.5mg. There may be some sleep disturbance in the early going but that's the only side effect I know of that people with cancer have mentioned. Allergy to filler could arise.
Make sure you use one of the reputable compounding pharmacies listed on the LDN website to ensure your LDN works properly.
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Hi Brenda:
